'Gastroesophageal reflux disease, or GERD, is a digestive disorder that affects the lower esophageal sphincter (LES), the ring of muscle between the esophagus and stomach. Many people, including pregnant women, suffer from heartburn or acid indigestion caused by GERD

Ok, who has gerd or lpr, but nothing helps? Who's been suffering for a long time and is hopeless?

Ok, who has gerd or lpr, but nothing helps? Who's been suffering for a long time and is hopeless?

Comment:

Becky Pedone
Me

Julia Ve
Is it constant or comes and goes?

Brian Chick Hennessy
Me years now suffer just have to accept it

Julia Ve
Is it constant or comes and goes?

Brian Chick Hennessy
Theres always some sym,,, now its really bad beceause im traning 5 days a week and eating like a horse.

Tina Raistrick
Me there constant. Nothing helps.

Julia Ve
Same

Julia Ve
Did endoscopy find anything?

Tina Raistrick
Julia Ve nothing

Julia Ve Tina
Raistrick it happens every day for the whole day? Cause mine is. Do you take any ppis?

Tina Raistrick
Mine is ok when I wake up but as soon as I eat or move around it's there. I've tried all ppis and none have made a difference. I've been prescribed fexofenadine 180mg but been on this since December and still no relief. What have you tried?

Heather Peel
What's LPR may I ask

Julia Ve
Silent reflux

Julia Ve
Laryngopharyngeal reflux (LPR) is similar to another condition -- GERD -- that results from the contents of the stomach backing up (reflux). But the symptoms of LPR are often different than those that are typical of gastroesophageal reflux disease (GERD).

Sandra Abou Rjeily
It's when the acid reaches all the way up to ur throat(and nose sometimes ), the symptoms are more felt in the respiratory system rather than the digestive system...

Kelly B Robinson
Julia Ve just to clarify that LPR is GERD it just manifests itself in the throat. You can’t have LPR without also having GERD. You can have GERD without LPR. Not everyone’s reflux makes it through the upper esophageal sphincter (UES).

Julia Ve
Kelly B Robinson mine is in the throat😥

Kelly B Robinson
Julia Ve yes. But you also have GERD. You can’t have LPR without having GERD first. I have the same.

Kelly B Robinson
Julia Ve have you had the proper tests to diagnose your LPR. Those are barium swallow, 24 hr multichannel ph test with impedance ( it is hard to find facilities that do this gold standard version of the test but Ottawa general does it), manometry and endoscopy. Those four tests combined give a patient the most information about their reflux situation. Not everyone has acid only reflux. Some people have bile reflux which does not respond to PPIs. It is a long hard slog to get all these tests through our health system which has such long wait times but it can be done with persistence. Then you have to address the issue with diet and lifestyle (eg sleeping elevated, eliminating exercise that puts pressure on the lower esophageal sphincter, not eating after 6:00 or lying down for three hours after eating)meds and possibly reflux surgery. I learned a had a condition called Gastroparesis which is causing my LPR. This was diagnosed through a four hour gastric emptying study. Food sits for too long in my stomach. I suspect I also have a very weak lower esophageal sphincter. I will find this out from my manometry test that I am having done in May. I am in BC.

Julia Ve
Kelly B Robinson I only did endoscopy and waiting for monometry. Endoscopy found nothing.

Kelly B Robinson
My endoscopy was clear and so were all the biopsies taken. Clear Endoscopies only show that at the time of scope no damage has been done to date. They can show food sitting in stomach indicating Gastroparesis (mine didn’t but the other test showed it) they occasionally can show bile sitting in stomach, they can sometimes show a lower esophageal sphincter that is very problematically always open. They can not rule out reflux. Additionally know there is a type of reflux called NERD which is non erosive reflux disease so people feel symptoms but it is not as erosive to the tissue. The test you really need is the 24 hr ph test. See if you can get trust done nearby but it should be the type I mentioned previously. It would be a haul but if you can’t get it in Markham than you could try to get a referral to Ottawa general. I have learned that people travel all over to get the proper 24 multichannel ph test with impedance.

Renee Whiteside
First, what I’ve learned throughout the years is that when I have a very bad flare it can take up to two weeks or more before I notice even the slightest improvement. Even with the healthiest/low acid diet for two weeks (no cheating). Yes, potentially weeks to feel any improvement-patience. Patience and more patience. Hang in there and be patient (which is the hardest part). It may feel like everything you eat affects you. Likely you are still very inflamed so naturally anything you eat will make you feel bad.

Next, with a bad flare it can take months for enough healing to occur to where you start to even feel semi-normal. Diet/stress reduction/no smoke/no alcohol/healthy weight are all a part of the equation.

You may feel at times that “hey I’m cured” because you are feeling better. Trust me you are likely not cured. You may have your GERD in-check but seldom does it just go away. It’s there eager to rear it’s ugly head and take you down like an epic tackle at an NFL game.

Listen to your intuition and know your self worth. There’s nothing worse than hearing a doctor say “it’s just stress you need a vacation”, or “some people just have sensitive stomachs”, better yet “you will be sick forever!” Trust me, I’m on my 5th GI doc before I found one that truly listened and committed doing everything in his power to help me improve my health.

Be an advocate for your own health. We get only one chance to do this right. Know your value and value your health.

Don’t let the nay-sayers get you down with their well meant advice or snide comments. Rise above it knowing you are doing the best you can for your body/your situation. It’s YOUR life.

Hang in there. Be patient (did I mention be patient), and don’t let let the bastards get you down. (A quote from my dad) you are worth it!

Julia Ve
Wow, amazing words❤❤ are you on ppis right now?

Renee Whiteside Julia Ve no I cannot take PPI’s due to allergy. This disease is no joke but we have a choice...deal with it or not

Julia Ve
Renee Whiteside what's helping you? I've been on bland diet for 2 months, no smoking, no spicy, no dairy, no sweets. Drinking ph water only. Tried ppis, but nothing. Trying givascon extra strength, not seeing any improvements.

Renee Whiteside With my last really bad flare it was three months before I started feeling better. Super bland diet/exercise even when I’m feeling poorly/no lactose/gluten or corn products. I take a very low dose ranitidine which stops working from time/time. It literally took me years to weed through what I could/couldn’t eat. Even so I got to the point to where literally everything I ate/drank gave me reflux. Horrible sick with no relief from herbals, galvisvon or equivalent.

One month ago I had the Stretta procedure. It’s far too soon to know if it’s worked or not. Hopefully by the end of the year I will see some reset😆results. Based on my health record Doc expects 50-75% improvement. 🙏🤞🏻

Julia Ve
Renee Whiteside hope it helps😥😥. What's stretta procedure?

Renee Whiteside
Julia Ve google it but basically it’s a procedure to promote muscle/tissue growth in the LES which will stop stomach contents from coming up. There’s a FB support group for Stretta. It doesn’t help everyone but helps most with some sort of improvement. Everyone is different so everyone will respond differently. It’s minimally invasive. Note that most people who had the Stretta leave the group after a while because they no longer need the support.

Julia Ve
Renee Whiteside may I ask if you take any anxiety meds

Renee Whiteside
Julia Ve we tried all that. Tried several different kinds. Nothing helped in the least. They made me super loopy. But, everyone is different.

Debbie Anastasio
7 years. Carafate and Prilosec helped up until a years ago. Now nothing seems to work. Everything makes symptoms worse😒

Renee Whiteside
Mine got progressively worse as well

Debbie Anastasio
Absolutely awful. Feel like I am living a nightmare. Even Mylanta and Gaviscon offer no relief.

Bruce Wilson
Try looking at the problem from a different angle ... has had me off meds and 95% symptom free (unless I bring it on myself and deserve it) for over 2 years. My wellness doc turned me on to it, and it works ... not for all, but many more than big pharma would like to admit. https://www.amazon.com/Why-Stomach-Acid.../dp/0871319314

Lisa Sigal Bruce
have you ever taken ppis? This book is good, but how can one wean off . It can take a very long time to wean off ppis

Bruce Wilson
Yes, initially I got the knee jerk diagnosis and prescription of high dose PPIs on top of Rantidine at night. Then I started my research. My wellness doc (MD who leans naturopathic) had me wean off of them over a couple of months, cutting the dose in half weekly, until I was literally one day one day off lowest dose, one day on two days off, then off all together. Came off without any rebound.

Louise Voss Thurn
Often doctors recommend getting off very slowly over an 8 week period. Seems many get off too fast and that can possibly create a greater chance of rebound.

Lisa Sigal
Bruce Wilson for how long have been taking ppis? Now that you off how are you maintaining the symptoms?

Lisa Sigal
I've been suffering and hopeless. I'm taking high dose of ppis for 4 years. I feel hopeless because I really want to wean off but then my symptoms become worse. I don't know how to live like this. I mean how can one be on a diet for the rest of the life.

Zoe
Yep me! Since birth here, I'm 38 now. Nothing much works, I haven't taken medication for a long time mind you, I don't like it.

Dominique Mimnagh
Never be hopeless. I’m still looking for cure but mine has improved a lot in the day time.

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